Foundation for

I just found out and I am sooooo sorrry for your loss. I cried instantly because I can't imagine how you feel but it started me thinking what Linzy has and is going through and I can't bare to see her in pain all the time. I spend everyday making sure she is happy making every moment count. I still hold out hope that she will live a long life somewhat healthly life but sometimes its so hard not to cry all the time. With her health it seems like she takes 2 steps foward than 3 steps back. My family and I pray for you and your family.

Today I was thinking of a post that was written about Mitchell waking up from a medical test asking where his chocolate and white powdered doughnuts were. It made me smile. I will be thinking of him and your family this weekend. I will light a candle at 10:00 a.m. Saturday in honor of him. I will be with you in spirit.

Peace & Prayers~ Dona Krystosek

Cupps Family,
I am deeply sorry for your loss. Your family are in my thoughts and prayers!!! I'm glad to have read that you are taking such a loss so well. Outside of a conribution to the foundaation if there is anthing that I can do don't hesitate to ask. I had never heard of this rare and devistating disease until reading it in the Tulsa World. Mitchell touched many lives, i can tell that just by the picture posted in the paper. He had a glow in his eyes and I do believe his heart was "bigger than a mountain. Once again if there is anything I can do don't hesitate to ask. My e-mail is posted. Good luck with your research and finding hope so another family could possibly avoid such a tragedy.
Most sincere condolences,
Shawn Ward / Claremore, Oklahoma

Cupps Family: Our daughter Kaelyn was in Miss Eva's class with Mitchell and he touched all of our hearts. We have followed his story and want to send your family our love and prayers. Travis, Heather, Kaelyn & Audrey Perryman

HOLA AMIGOS
Mi hijo tenía la misma enfermedad que Mitchell, yo vivo en España y como esta enfermedad es genetica supongo que tenemos algún descendiente común. Mucha suerte y un abrazao.

Troy,

Thanks for pointing me to the site for Little Giants Foundation so that I could learn more about Mitchell and what he is doing and the work to help others who are affected by dwarfism. It is encouraging to see. It is good to catch up with you after a number of years. Thanks.

David

Dear Cupps Family~

My son too has a very rare form of debilitating dwarfism. I was told that he is the 17th case ever documented and the 4th ever with his type of mutation. The lack of information on these diseases and no cure is unacceptable. I applaud your efforts and want to remind you to NEVER GIVE UP. I believe that anything is POSSIBLE.

Many Smiles~ Dona (Levi's Ma)
www.littleLevi.com

Hello Cupps family, My name is Rosie and I am friends with Eva. She has told me so much about the joy she feels every moment she gets to spend with Mitchell and the rest of your family. I did not know about SIOD before hearing about it from Eva. She is so proud to be a part of this journey with your family. I have had the privelege of viewing some of the many pictures she has taken of Mitchell and I can clearly see how she could become so attached. I want to thank you all for sharing your story and allowing myself and other people to become more informed about this condition. Thank you for your courage. Mitchell, I can't wait to meet you when you get home. You are my hero.

Sincerely, Rosie Roberts

Hi! I had the joy, as did my co-workers, of working with Mitchell today at the Hospital. He is such an inspiration to all of us. I enjoyed the videos on YouTube and have told so many people about your foundation. God Bless and Best Wishes to you Mitchell for your health and future.

Chad Haynes

Hello Cupps Family!
Troy and Michelle, I don't believe I have met you personally, but I had your daughter Megan in class a few years ago at Metro. I no longer teach, but my children still go to Metro. I have seen Mitchell around the school and have to say that he is inspiring! My husband and I had a child with a rare form of dwarfism, so rare in fact that there was no name for it. His was the first case they had ever seen. I knew of Mitchell's condition, but didn't know the extent that your family was involved in finding a cure until I got the e-mail from Metro about the Make a Wish event this weekend. My thoughts and prayers are with Mitchell and your family as you pursue treatment.

Happy birthday, sweet Mitchell. I wish for you all the wonderful blessings in life.

--Vickie

P.S. Happy belated birthday!!!

hello, my name is jessica, i am 26 yr old single mother. i have a beautiful 2 yr old daughter. first of all i want you to know that your son mitchell is in mine and my families prayers!!! We have seen so many doctors and they are about 98% positive that she has SIOD but the doctors are so relunctant to actually say she has schimke, and they are afraid to even do much testing. I have thought for so long that we were all alone. i have looked for other parents with schimke children and so far you are the first i have found. i have so many questions that i would like to ask you! and i was wondering if mitchell has fsgs, and i would like to know if there is anything i can do for my daughters immune system problems?? my daughter is having problems with her teeth cracking and i wanted to know if that is because of the schimke? i would also like to know about his hips because my daughter has problems with her hips as well her abdomen muscles(belly button)?

Happy 5th Birthday Mitchell. We are so proud of you!

I praise God for Mitchell is fearfully and wonderfully made by Him. Blessings to all of you.

I feel very called by God to pray for Mitchell. I have spread the word to as many people as possable. I have 2 major organizations praying for him already.

Cupps Family,
I was visiting Tulsa(from Wichita, KS) and happened to be sitting behind your family at the movies. I saw your little boy and knew that he was much older than his size. I saw the t-shirt you were wearing that directed me to this website. Your family's story is an inspiration and I am sure it has touched many lives(more than you will ever know). May God bless you.

Dear Cupps Family,
Congrats on creating such a wonderful resource for families! Thank you for including a link to our Schimke immuno-osseous dysplasia information on your website. We are grateful to work together to promote awareness and understanding of this condition. We have added your website to our list of support sites for Schimke immuno-osseous dysplasia, which can be viewed here. We wish you all the best!

Our daughter, Madeline, was in Mrs Olsen's P3 class last year. Being the home-body that she is, she sometimes found it difficult to go to class. However, once she saw Mitchell, her eyes lit up! Madeline found comfort in his kind spirit. She enjoys his friendship and prays they will be in class together again in K4. Thank you for sharing your inspirational story and your remarkable son with us! God is so good! We lift you up in our prayers....Love from another Metro family, Geof, Cassy, Chandler, Savannah, Madeline and Kincayde Eng

Hi Michelle,

After having a few weeks of contact with you, I though it's time to write something in this guestbook. We are lucky that you have started this website so that we have contact with other parents who have children with SIOD. Together, we can chair experiences, toughs, … but to most important thing: we don't feel like being alone!

Filip from Belgium (Europe)

I just wanted to let you know this is so inspiring to my family. My son was recently diagnosed with cartilage hair hypoplasia, but they mentioned possibly SIOD......it seems they are alike and I pray my son was not misdiagnosed. If possible please email me at wcrcc-tanya@att.net, I would love to talk to you. As I sit here and read moms journal, it makes me feel like wow I'm not teh only one that stayed up day and night looking for answers! WOW what a great site

Hello Cupps Family!
You are so right when you say that Mitchell touches people like none other. My son Jaxon was in Mrs. Olsen's class with him, and we have been blessed to get to know Mitchell. He is a precious, precious little boy. I want you to know that Mitchell is Jaxon's prayer partner, and we pray for him every day. I admire you for your faith and tenacity. He is blessed to have you as parents. God bless you all!

Mitchell,

I just want to say MawMaw and myself have all the faith in you and your family. We pray for you every day and our hearts are always with you. We just wish we could see you more because we love you so much. We miss you! May God be with you and your family thru the good times and the bad times.

Troy, Michelle & family -

My heart goes out to you and your family. I am part of the extended Comm-Arts family and received an e-mail sharing your story from Jennifer and VIckie. We had one child with a serious complication for a time... thankfully she is completely healed. It was nothing close to what you and Mitchell face, but I identify with the instant life-changing moment of a serious diagnosis for your helpless baby... and with the way it changes how you look at everything from then on. I am sharing your site to my Twitter and Facebook groups and will be praying for your family.

Best,
Mandy Vavrinak

Hello Michelle, Troy & Mitchell,

I was so touched by Mitchell, his courage and uplifting energy. I am so glad that you(Michelle) and I reconnected after all these years and I hope I can help in anyway, I don't have lots of riches but I truly believe in "paying it forward" through donating my time and energy to helping a wonderful cause. I help with several local charities here in Phoenix and it is one of my goals in life to "pay it forward".

If you ever need anything, even if it's just a voice from the past. I will be there. Also, please let me know if there is anything I can do out here in Phoenix/West to help. I am posting your link on my FB page and hopefully the word will spread. Thank you for being such wonderful parents to your children and give Mitchell a big kiss from his "Aunt Tabatha"

Take care and God Bless you all.

Love always,

Tabatha