CURRENT NEWS:

CHECK OUT EMILY at: http://www.caringbridge.org/visit/EmilyKoesters

     

 And also on youtube at:  http://www.youtube.com/user/OurLittleAngle

 

OCTOBER 2013:

October is Dwarfism Awreness Month. For more info: www.lpaonline.org

 

-------------------------------------------------

Feb 2010

Five-year-old Mitchell Cupps lost his battle with Schimke Immuno-osseous Dysplasia on Tuesday, January 19, 2010.  He passed away peacefully in his mother’s arms, surrounded by his family who fought fiercely to prolong his life.  In his brief time on earth, Mitchell became the face of those who suffer from rare forms of dwarfism, many of who are children whose voices must be heard to solve the mystery of their conditions. 

Through Little Giants Foundation, Mitchell leaves for us a legacy of purpose that will last a lifetime.  In memory of our precious son who touched so many lives, whose own life offered hope where there once was none, we now move forward with our mission. We have much work ahead as, together, we demonstrate how powerful mere mortals can be when love drives purpose.

                                                               Troy “Mitchell” Cupps

                                                                   Our Little Giant

                                                   August 5, 2004 – January 19, 2010                                                            

                                              

 

1/19/2010

Our Little Giant, Mitchell Cupps, Goes to Heaven

It is with great sadness that Mitchell has left this earth and has joined our Father in Heaven this morning, Tuesday, January 19, 2010 at 8:29am.

It is with great joy that we celebrate Mitchell's life, and celebrate him being in heaven in no more pain, no more needle sticks, no more headaches, no more hospital stays, and no more trauma and that he will live eternity in heaven playing in the sand.

It is not everyday we get to witness the miracles from God that we read about in the Bible.  But our family and those who share Mitchell's life have all had a front row seat to seeing God's miracle in such a tiny little boy who could do as his friends did, count in 3 languages and spread cheer into our hearts.

We were the lucky ones to be able to witness the little giant in Mitchell, having a life changing and humbling effect on thousands of people across the world......his heart was truly as big as a mountain.

It is a difficult time for our family, for Mitchell's friends and for all of his extended friends from Church, CaringBridge, email prayer chains, Little Giants Facebook fans, hundreds of Church prayer lists from around the nation......but please know and remember....We know  God has had his hand on every moment of Mitchell’s life and We will Praise Him in this storm!

Bless you and thank you so much for your prayers and support of Mitchell and our family. Please continue to pray for our comfort and peace over the next few days and weeks as we will greatly miss our precious little giant.

Bless You,

Troy and Michelle


YOUTUBE CHANNEL LINKS ADDED: http://www.littlegiantsfoundation.org/youtube-videos/

-------------------------------------------------------------------------------------------------------------------------------------

Behind these faces lie the hearts and determination of lions. Through the ongoing challenges and battles our youngest child, Mitchell, faces every day, he has given us a strength and courage that belie both his age and his tiny size.

Mitchell was born with Schimke Immuno-osseous Dysplasia (SIOD), one of the rarest forms of Dwarfism. Mitchell's diagnosis is so rare, in fact, only four others in the United States and approximately 45 in the world are known to have it. You may have heard the term Primordialism, which is used to describe the doll-like size of a person affected with Primordial Dwarfism. SIOD is similar to that in terms of small size and body proportions, which are very different than the most common type of Dwarfism called Achondroplasia.

Our journey to this diagnosis has given our family a whole new look at life in general. Our tiny boy with a huge heart has touched the lives of everyone he meets so profoundly we often believe we are in the presence of an angel. As human beings, it's natural to turn a blind eye to afflictions or circumstances that don't personally affect us -- until they do. For our family, we are now the warriors of Schimke and other rare forms of Dwarfisms, determined not only to increase awareness of them but resolve to do everything in our power to save the life of our child and others who suffer from these conditions.

We established Little Giants Foundation for this very purpose:  To be a beacon of light and inspiration for others in our situation who need information, funding, a hand to hold, and a glimmer of hope that their child's life is not in vain. To all those who have felt the unique helplessness of a child diagnosed with the rarest of medical conditions, you have found a home with us.
We will not go quietly.

 

 

 

Join the FACEBOOK fan page, click here

 

Mitchell on YOUTUBE

 

 

  

  

Email Contact:    Troy@LittleGiantsFoundation.org 

                                     Michelle@LittleGiantsFoundation.org

Phone:  918-591-3050