CURRENT NEWS:

FEBRUARY 2012

Video from Nebrasksa - Fund Raiser Feb 11, 2012 

http://www.wowt.com/home/headlines/Little_Giants__Dwarfism_Awareness_138969549.html

 

JANUARY 2012

Little Giants Foundation Event

Feb 11, 2012

Sarpy County Fairgrounds

Springfield, NE

6-11 PM

FOOD, MUSIC and FUN!

 Tickets are $20 in advance or $25 at the door.

Raffle Tickets- $5 for 1, $10 for 3 ( Signed Garth Brooks guitar, jewelry, TV and more!)

Please email jeek01@gmail.com or send checks payable to Little Giants Foundation to:

 Koesters

15603 S Hwy 6

Gretna, NE 68028

 AND we will send you the tickets!

NEW VIDEO for emily - http://www.youtube.com/watch?v=S7jHya_CTYw&feature=youtu.be

Check out facebook link - http://www.facebook.com/events/263336420397783/?context=create

Fundraiser Announced for February 2012

 

DECEMBER 2011

LGF DONATES $10K for schimke research to University of British Columbia...and gets a $10K matching donation!

NOVEMBER 2011

NEW FUND RAISING COMING SOON!  BIG RESULTS THROUGH RESEARCH! 

CHECK OUT EMILY at: http://www.caringbridge.org/visit/EmilyKoesters

     

 And also on youtube at:  http://www.youtube.com/user/OurLittleAngle

    

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FEBRUARY 2011: $20K fund raiser

Per Caring Bridge for Emily

  • Tuesday, February 1, 2011 2:14 PM, CST
    To our faithful followers, spot checkers and newbies-

    Emily Miranda Koesters' Nebraska Little Giants Day 1st anniversay, which was proclaimed by Governor Dave Heineman last year is coming up on FEBRUARY 10th!

    The fight continues... The life expectancy for Emily's disease ( SIOD- Schimke Immuno-osseous Dysplasia) is age 8-15!  Emily is 7 and 1/2 now.  The Schimke researches are on the brink of a drug that may help PROLONG lives of SIOD.  LET EMILY LIVE TO TEST IT!  Here's how to GIVE NOW:
    1. Go to www.littlegiantsfoundation.org and click on the far right tab: GIVE NOW
    2. Send us a check made out to Little Giants Foundation and we will send a mass mailing in.
    3. SEND this site and/or FACEBOOK, LGF site to EVERYONE YOU KNOW to contribute!

    We are setting a goal and deadline, which you may exceed, of $20,000.00. Think about it: We have at least 2,000 followers at 5 or 10 dollars a piece- we can do this by FEBRUARY 14th!  Not only is this a TAX write off, but 100% of the money goes straight to the researchers for the drug!  100%! 

    We are parents pleading on bended knee!

    Don't delay; Emily's life depends on it.

    Believe-
    Mommy Erin and Daddy Joe Mo
  •  

    OCTOBER 2010:

    October is Dwarfism Awreness Month. For more info: www.lpaonline.org

     

    The Little Giants Foundation will benefit on October 22-23, 2010 from a silent auction to be held at the "All About Me Women's Expo at the ORU Mabee Center. For more info on this event:

    http://www.allaboutmewomensexpo.com/

    or

    http://www.mabeecenter.com/events.php?id=aamwexpo2010

     

     

    JUNE 2010

     

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    Feb 2010

    Five-year-old Mitchell Cupps lost his battle with Schimke Immuno-osseous Dysplasia on Tuesday, January 19, 2010.  He passed away peacefully in his mother’s arms, surrounded by his family who fought fiercely to prolong his life.  In his brief time on earth, Mitchell became the face of those who suffer from rare forms of dwarfism, many of who are children whose voices must be heard to solve the mystery of their conditions. 

    Through Little Giants Foundation, Mitchell leaves for us a legacy of purpose that will last a lifetime.  In memory of our precious son who touched so many lives, whose own life offered hope where there once was none, we now move forward with our mission. We have much work ahead as, together, we demonstrate how powerful mere mortals can be when love drives purpose.

                                                                   Troy “Mitchell” Cupps

                                                                       Our Little Giant

                                                       August 5, 2004 – January 19, 2010                                                            

                                                  

    Help us make a life-saving change for all the Little Giants of the world.  Donate now.

     

    1/19/2010

    Our Little Giant, Mitchell Cupps, Goes to Heaven

    It is with great sadness that Mitchell has left this earth and has joined our Father in Heaven this morning, Tuesday, January 19, 2010 at 8:29am.

    It is with great joy that we celebrate Mitchell's life, and celebrate him being in heaven in no more pain, no more needle sticks, no more headaches, no more hospital stays, and no more trauma and that he will live eternity in heaven playing in the sand.

    It is not everyday we get to witness the miracles from God that we read about in the Bible.  But our family and those who share Mitchell's life have all had a front row seat to seeing God's miracle in such a tiny little boy who could do as his friends did, count in 3 languages and spread cheer into our hearts.

    We were the lucky ones to be able to witness the little giant in Mitchell, having a life changing and humbling effect on thousands of people across the world......his heart was truly as big as a mountain.

    It is a difficult time for our family, for Mitchell's friends and for all of his extended friends from Church, CaringBridge, email prayer chains, Little Giants Facebook fans, hundreds of Church prayer lists from around the nation......but please know and remember....We know  God has had his hand on every moment of Mitchell’s life and We will Praise Him in this storm!

    Bless you and thank you so much for your prayers and support of Mitchell and our family. Please continue to pray for our comfort and peace over the next few days and weeks as we will greatly miss our precious little giant.

    Bless You,

    Troy and Michelle


    YOUTUBE CHANNEL LINKS ADDED: http://www.littlegiantsfoundation.org/youtube-videos/

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    Behind these faces lie the hearts and determination of lions. Through the ongoing challenges and battles our youngest child, Mitchell, faces every day, he has given us a strength and courage that belie both his age and his tiny size.

    Mitchell was born with Schimke Immuno-osseous Dysplasia (SIOD), one of the rarest forms of Dwarfism. Mitchell's diagnosis is so rare, in fact, only four others in the United States and approximately 45 in the world are known to have it. You may have heard the term Primordialism, which is used to describe the doll-like size of a person affected with Primordial Dwarfism. SIOD is similar to that in terms of small size and body proportions, which are very different than the most common type of Dwarfism called Achondroplasia.

    Our journey to this diagnosis has given our family a whole new look at life in general. Our tiny boy with a huge heart has touched the lives of everyone he meets so profoundly we often believe we are in the presence of an angel. As human beings, it's natural to turn a blind eye to afflictions or circumstances that don't personally affect us -- until they do. For our family, we are now the warriors of Schimke and other rare forms of Dwarfisms, determined not only to increase awareness of them but resolve to do everything in our power to save the life of our child and others who suffer from these conditions.

    We established Little Giants Foundation for this very purpose:  To be a beacon of light and inspiration for others in our situation who need information, funding, a hand to hold, and a glimmer of hope that their child's life is not in vain. To all those who have felt the unique helplessness of a child diagnosed with the rarest of medical conditions, you have found a home with us.
    We will not go quietly.

     

    To Donate Now, Click Here.

     

    Join the FACEBOOK fan page, click here

     

    Mitchell on YOUTUBE

     

     

      

      

    Email Contact:    Troy@LittleGiantsFoundation.org 

                                         Michelle@LittleGiantsFoundation.org

    Phone:  918-591-3050